• Update: Our beautiful Charlie has been blessed with hundreds of thousands of supporters from around the world. We are so incredibly grateful for all your continued love and support, and would like to take this opportunity to advise you of what we shall be doing with the money raised for Charlie’s cause.

    In the following weeks we will be setting up The Charlie Gard Foundation: a foundation that will help other children with mitochondrial diseases, and rare childhood illnesses. Too many children are losing their fight against rare medical conditions, which emphasises the need for more research, and we hope we can help deliver this through Charlie’s foundation.

    We also intend on becoming a hub of information for parents that may find themselves in a situation like ours. There needs to be more clarity for parents about parental rights when it comes to making life-saving decisions about their children. Access to medical treatment, and expert clinicians, should never be denied if funds are available. We will be looking at ways in which we can help make things clearer for families and hospitals alike.

    We feel that the foundation will be a lovely legacy for Charlie, and we hope that you will all continue to support us in honouring the life of our little warrior as he helps other poorly children and their families.

    It also gives us great pleasure to announce that gofundme.com have been so touched by our cause that they have kindly donated £10,000 towards Charlie’s foundation. A wonderful gesture from the team, and we are extremely grateful for their generosity. All existing donations from our gofundme fundraising account – and any new donations – will now go towards Charlie’s foundation.

    From the bottom of our hearts, we thank you all for your support.

    The C Team (Connie, Chris and our angel Charlie)

    It’s with great sadness that we have to inform you that Charlie passed away earlier this afternoon. Connie has released a brief statement: ‘Our beautiful, little boy has gone. We are so proud of you, Charlie.’

    We ask that everyone respects the family’s privacy at this difficult time, but we would all like to say a huge thank you to everyone for your continued support.